More alternative therapy: Part 2 – A scattering of needles

…As soon as he entered the room, the practitioner began to work on my neck. It felt like he was using his fists; starting from my collar bone and then rubbing them up my neck with vigorous force. My skin began to burn from the friction, and the procedure felt like it would have been more relaxing and pleasant, had it been performed with massage oil. After about 10 minutes of the neck burning massage, the practitioner began to slowly push down on my head, encouraging it to bend towards each shoulder. I couldn’t believe how far I was able to stretch. It was as though the stinging massage had loosened all the tension in my neck.

The practitioner then walked away from the massage table and when he reapproached I could see him putting on some blue latex surgical gloves. He asked me to open my mouth. He then inserted his index finger inside my mouth and started to press gently inside my cheek. His thumb pressed lightly through the outside of my cheek, so that it met with his index finger. He massaged using a pressing motion, and in small circular movements. He mumbled something about the temporomandibular joint (TMJ). This massage lasted a few minutes and was repeated on the other side of my face.

Again the practitioner moved away from where I was lying. This time he exited the room. After a few minutes he returned, and whilst leaning over me he announced, in a matter-of-fact tone, “Acupuncture”. Oh, I wasn’t expecting that! I had never had acupuncture before. I asked if it was going to hurt. He assured me that it wouldn’t. He swiftly placed the needles in different points around my jaw, forehead, and the top of my head and my collarbone. The needles felt like they were being elegantly scattered in to place. The majority of the needles glided into my skin, with ease, and caused only a slight sensation of my skin being pricked. But, the insertion of a needle in the part of my jaw below my ear, where it forms an angle to make my chin, caused immediate and intense pain. A tender soreness radiated deep into my jaw. I was in pain, I exclaimed, and alerted the practitioner to the offending needle. He responded saying, “Oh, yes that one will hurt!” I was asked to continue to lie still for 20 minutes. I heard the sound of the door close as the practitioner left the room, and I was left listening to the soft jazz and wondering how many needles were in my face, and what I looked like.

After about 10 minutes a woman, who I hadn’t yet met, entered the room. She greeted me with a jolly sounding, “Hola” and told me as she was turning the needles slightly, that she was there to do just that. A few seconds later she left the room. I was again left lying motionless on the massage table, listening to the soft jazz.

Another 10 minutes passed and again the door opened. I could see from my lying position that it was the same woman who had turned the needles, who was now entering the room. She swiftly collected the needles from my face and neck, with the ease in which they had been placed.

This new practitioner was a comical woman. She told me that she was a nutritionist and she spoke to me about my diet. She presented me with a list of suggestions for a healthy diet, that she told me she had spent time translating from Spanish to English, and to excuse any unusual translations; blaming Google Translate for such errors. The focus of the diet was on eliminating animal products, dairy, and sugar. I was amused by the Spanish theme of the diet. I was allowed a typical ‘Spanish breakfast’ consisting of toasted soda bread with crushed tomato and olive oil; this was something I assumed the Spanish clients would refuse to abstain from. Chorizo and sugary products from the Pastelería (bakery) were ‘prohibited’. I started to think about the foods I liked. Hmm, there was no mention of Marmite or PG Tips tea…There was also a list of suggestions for dietary supplements including Vitamin C powder, Omega 3, a B vitamin complex and Magnesium.

Next I was asked again to sit opposite the mirror and she began to explain some exercises, which I would need to carry out three times a day. She laughed each time before beginning her explanation and demonstration. Maybe she was unsure of her translation. Maybe she found it humorous to watch our reflections as we performed the exercises together, which involved contorting our faces into different shapes, putting our tongues in different positions, and making clicking sounds with our tongues on the roof of our mouths.  These exercises I would most definitely be preforming at home, in private!

And so my experience of the craniofacial rehabilitation concluded.  I liked the holistic approach. I would continue to attend appointments every week in the hope that some of the pressure in my ear could be reduced…

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More alternative therapy: Part 1 – skin popping included!

My consultation with the maxillofacial doctor, which by this time was 6 weeks previous, had concluded with her recommending some treatments for me to try. One of her recommendations was that I embark upon some craniofacial rehabilitation. This is a form of physiotherapy that can help temporomandibular (TMJ) (jaw joint) disorders, by using a variety of methods; understanding the relationship between the neck and shoulders, and the head and the TMJ.

This would be yet another alternative method I would try, to see if the pressure in my ear could be reduced, by addressing issues with my jaw. At this point in my story I was continuing to see my chiropractor, who was also doing jaw adjustments. I was also wearing my new night guard to help with my teeth clenching and grinding, whilst sleeping. Maybe this new therapy would complement the other things I was trying.

I had come to terms with the fact that the hearing in my left ear wasn’t going to return, and I was developing strategies to manage my life with unilateral hearing. However, I wasn’t prepared to accept that I would have to live the rest of my life with the constant discomfort of the feeling of pressure in my ears. The doctors had been unable to provide me with any medical-based relief, and so there was nothing to lose by seeking alternative help.

I arrived at the clinic on a Tuesday morning in May, and quickly found myself sitting in yet another waiting room. It was early in the day and I was the first person waiting. The clinic had a clean feel to it. There where white walls, and a light coloured wooden floor. In front of where I was sitting was a light wooden coffee table, with a white candle placed in the middle. Also on the table was a small metal tray in which sat an ornament of a Buddha, alongside some incense sticks. On the wall opposite me was a circular logo, with an outline of a head pictured sideways-on. Above the head, were the words ‘Integrative Craniofacial therapy’. To the right of me, hung a small print of one of Picasso’s paintings; adding a slight touch of lively colour to the otherwise sterile-white wall. Around the room were a variety of different sized leafy pot plants; some small, and perched on top of shelves, and some bigger and nestling into the corners of the building. The feeling of serenity was complete when the music speakers were turned on; initiating the low and warm tones of Nina Simone singing jazz, that floated around the clinic.

First I met the main specialist. I immediately recognized him from the website, and I believe it was he who had originally set up the practice. He asked lots of questions. This initial meeting was conducted at swift pace and with seemingly professional efficiency. He asked me questions about my general health, my diet, whether I was stressed, and about my sleeping patterns. He didn’t seem surprised when I told him about my sudden hearing loss. He scribbled down notes in scrawled handwriting. He felt around my neck and jaw and asked me to open and close my mouth a few times. He said I have issues with my TMJ muscle. He then took me to the room adjacent, where I met another practitioner, this time a woman.

The woman spoke in English and gave me a lot of explanation about what my treatment would consist of. She explained how first she would work on my lower back, and then gradually work upwards towards my neck and face. She began by massaging outwards from my spine. I sat in my underwear, on the edge of a massage table in front of a mirror. I watched as she worked her way up to between my shoulder blades. The therapist was very friendly and seemed to be using her time with me as an opportunity to practise her English speaking skills; which I was very happy about, as it meant that I was able to relax and forget any language-based stress. Whilst I was gazing into the mirror, focusing on nothing in particular, she told me she could see (without touching me) that there was inflammation on the left side of my jaw. I glanced up and looked at my face in the mirror. I could see the inflammation too. I had seen it in my reflection since the day I’d lost my hearing. Yet I couldn’t recall if there had been swelling there before my hearing loss.

I was then asked to lie down on my stomach, on the massage table. She started pulling at my skin around the base of my spine. As she pulled there was an occasional loud popping sound. This was a new experience that no amount of massages enjoyed and endured whilst living in Thailand could have prepared me for. It was quite a painful and uncomfortable experience, yet was also quite satisfying – like tension was being forced away from my back with every pop. The practitioner explained that she was releasing my skin from the bone.

I asked the practitioner if she’d ever seen anyone who’d suddenly lost their hearing. She said she had. She said she had seen people with all sorts of problems: problems with facial muscles, problems with senses, neck problems etc… The walls around the small massage room were decorated with posters. The posters were diagrams of the mouth and teeth. The posters showed the connection between the ears, nose and throat. The posters showed how issues with the neck can affect other parts of the body and face. Hmm, these were all familiar issues.

I then asked the practitioner more directly if she thought my jaw problems could be connected to my hearing loss. She immediately replied, “Yes”, as though it was a question that didn’t require any thinking time to answer. She then quickly added, “But obviously I don’t know what’s going on inside the ear…” When I told her that my MRI scan results had been normal, that there was no virus, that my blood tests had been normal, and that the doctors couldn’t explain my hearing loss, she said, “Well, if they don’t know, then 99 percent I think it could be connected to your jaw.” She also mentioned some other possible attributing factors including stress, serotonin levels, and hormones.

After about half an hour of massage, the woman left the room and the original guy returned…

Seeking alternative help – Trying to solve the mystery: Part 2

…Just under 7 weeks after losing my hearing, I went to consult with a chiropractor. I had never been to a chiropractor before, and wanted to know his opinion about my situation. My boyfriend and I arrived for my initial consultation, and we were greeted with a handshake from a very professional-looking English guy. We immediately felt at ease. He had a calm and patient manner, and listened to my story; asking relevant questions throughout. He was so refreshing to talk to and filled us with hope and optimism. None of the hospital specialists had shown any support of my theory that an issue with my neck or jaw could have contributed to my sudden hearing loss.

The chiropractor showed us a poster similar to the one below:

Note that the vertebrae C1 – C4 all have connections to the ear and hence to hearing. The chiropractor told us that it was completely plausible that a problem with my neck could be affecting my hearing; perhaps due to a restriction of blood flow or a problem affecting the auditory nerve. He obviously was interested in my case, and also showed great optimism, and pride in his work. He didn’t give us false hope. He said he could definitely help me. He felt my whole neck was ‘blocked’, and said he could help with this, and this could possibly in turn help me regain some hearing.

I continued to see the chiropractor. Each time he made similar adjustments to my neck and back. He helped me understand so much about the connections in the body, the nervous system, and how to maintain good spinal health. During one visit, he also told me a little about the history of chiropractic, something that I later looked up at home:

The history of chiropractic began in 1895 when Daniel David Palmer of Iowa performed the first chiropractic adjustment on a partially deaf janitor, Harvey Lillard. While Lillard was working without his shirt on in Palmers office, Lillard bent over to empty the trash can. Palmer noticed that Lillard had a vertebra out of position. He asked Lillard what happened, and Lillard replied, “I moved the wrong way, and I heard a ‘pop’ in my back, and that’s when I lost my hearing.” Palmer, who was also involved in many other natural healing philosophies, had Lillard lie face down on the floor and proceeded with the adjustment. The next day, Lillard told Palmer, “I can hear that rackets on the streets.” This experience led Palmer to open a school of chiropractic two years later. (Wikepedia)

So there is a direct link between chiropractic adjustments and the restoration of hearing, after hearing loss has been experienced!

I continue to see my chiropractor every few weeks now, and my neck is feeling much better. Although there has been no miracle cure, I am happy to know that I have taken the time to sort out a problem that I have lived with for so long, and will continue to practise good spinal health. I also continue to refuse to lose all hope in one day possibly experiencing some improvement in my condition. I’m not saying that I believe I will have a complete recovery, more that our bodies take time to heal and maybe one day things could improve for me or become more comfortable.

I also went to see an osteopath. He was an interesting man, who was obviously passionate about his work, and keen to continue to learn new things about the body. He also specialized in Chinese medicine. He took another different outlook on possible reasons for my hearing loss. It was my first time consulting with an osteopath. He asked me lots of general health questions about my digestion, whether I had bladder infections, and how well I sleep. He placed his hands on different parts of my body and said that there was a blocked channel of blood flow to my head. He also said that there was a problem with the membrane in my deaf ear. He placed little stickers on different parts of my body; some on my feet; white quartz stickers on my jaw next to my ear, which were positioned on acupuncture points; and mustard seeds on pressure points on my ear – relating to the ear, nervous system and jaw. I had to press the mustard seeds firmly throughout the day. During future visits he also explained that he could feel my deaf ear was ‘impacted with pressure’. He did lots of things to help with blood flow to the ear; applying light pressure in different areas. He also talked about how the kidney is directly associated with hearing in Chinese medicine. The osteopath was obviously a very divergent thinker. Nevertheless, the little white stickers that he placed next to my ears did provide some relief from the ear pressure I experience. I also continue to stay in touch with him, and see him every month or so. He finds my case interesting. He explained to me that he can easily fix something like tennis elbow, but my case was something he hadn’t seen before and it intrigued him. He enjoyed the challenge of exploring his manuals for possible methods of help, and then putting these strategies into practise.  He also filled me with hope and said that if the doctors can’t find the answer, then maybe he can, or maybe a physiotherapist, or someone else. He urged me to never stop seeking help.

I continue to feel that whilst the hospital specialists still have no answer as to a reason for my loss of hearing, that it could be related to something skeletal or other ongoing issues with my body. Maybe just one factor or, possibly more likely, a few issues working together to have caused my hearing loss.

Seeking alternative help – Trying to solve the mystery: Part 1

When I first lost my hearing, I thought it was a result of a problem with my neck or my jaw. When I first lost my hearing, I never thought my hearing would be lost forever. I have had problems with my neck for many years, and the day I lost my hearing, it was feeling painful. As mentioned before, I had previously been told that the pulsatile tinnitus I experienced six years ago (for three years) was due to problems with my neck; this strengthened my impression that the loss of my hearing could be due to a cervical spine issue. Also, my jaw looked swollen on the left too; my parents even commented on this when I Skyped them after getting out of hospital. In fact, there are some other ongoing health issues that I have, that may or may not be connected to the sudden loss of my hearing in my left ear. I have had a deviated septum for as long as I can remember, which means that I cannot breathe through my left nostril. When I was 4 years old, I had my left kidney removed. I have also had problems with my jaw; due to grinding my teeth when I’m asleep, and for which I wear a dental night guard– and yes, this is also worse on the left side; evident as my teeth on this side are completely worn down.

Since losing my hearing I have sought alternative help in addition to the consultations I have had with hospital specialists and doctors. There is so little known about Sudden Sensorineural hearing Loss (SSHL), and what causes it. I read that only 10 to 15 percent of the people diagnosed with SSHL have an identifiable cause. I may be naïve in thinking it, but I couldn’t help but feel that maybe the 85-90 percent of people who lost their hearing to an unknown cause may not have explored all possible explanations.

I have met many people along the way so far, in trying to solve the mystery of my hearing loss; all who seem perplexed at this condition. Whilst feeling stranded and often helpless in a world of medical testing, these alternative sources of help have provided me with relief and also hope that there could be an answer to my problem. I wanted to make sure I was investigating all possible reasons for my hearing loss, and didn’t want to stop until I had more information on what had happened to me to cause the loss of hearing in my left ear.

After the day in the auditorium when I experienced SSHL, I had carried on with life as usual; going to work, and was waiting for a recovery. I was finding everything very difficult, and four days after losing my hearing, my boyfriend got me an appointment to have a Shiatsu massage. I had never had this type of massage before, but knew that Shiatsu is a physical therapy that supports and strengthens the body’s natural ability to heal. I arrived at the massage centre on a Friday afternoon, after work. I had vertigo at the time. My experience of the massage was a relaxing one, until I sat up from the bed and everything began to spin around me. I had guilelessly hoped that maybe a massage could help somehow unblock my ear; by fixing a possible related problem in my neck. The masseuse seemed shocked when I told her my story. She also told me a story, about her sister who had once had a cold, and had temporarily lost some of her hearing. Everyone seems to have a hearing loss or ear infection story to tell.

A week or so later, after seeing my GP and being given anti-inflammatories and nasal sprays, things still hadn’t improved. I went to see a physiotherapist. I told him my story. He seemed intrigued. He carried out an assessment of my body by means of manipulations and movements; testing my range of motion. He also observed my posture and I was examined for signs of abnormalities. He told me that I have a problem with the whole of the left side of my body. The physiotherapist was Spanish, but he spoke to me in English saying, “Your right side of your body can do everything. Your left side cannot.” I have seen physiotherapists before due to problems with my neck, and one of them said something similar; referring to the fact that when my left kidney was removed, it kind of unbalanced me; causing problems with my neck. My hearing loss had been on my left side. Could this all be connected? The Spanish physiotherapist also commented on my jaw and said it was not centralized. He did lots of manipulations, and although he wasn’t a miracle worker, it was good to speak with someone who actually acknowledged that the problems with the left side of my body could have contributed to my hearing loss. He also said that Spanish doctors do not know much about this area of medicine – I think he meant that specialists are often conservative in their practice and may not look at other factors surrounding a problem; rather they generally concentrate only on the issue of complaint…