About me and my blog

Hi, My name is Carly. I am 36 years old and I am currently living in Spain. I am originally from a small seaside town in Yorkshire called Bridlington, and have also lived in China and Thailand. I am an Early Years primary school teacher, and have been teaching for more than12 years. I love spending time with my sister and her boyfriend, walking in the countryside, getting lost in Madrid, my boyfriend, traveling, going out for breakfast, my family and friends, taking photos, listening to music, storytelling podcasts, baking, running, drinking wine, and eating spicy food.

In August 2016 I experienced sudden sensorineural hearing loss in my left ear. I started this blog as a way to inform my friends and family about my progress, for anyone else who is going through a similar experience as me, or for anybody who is interested in learning about this type of hearing loss, and the way it can affect everyday life.

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35 thoughts on “About me and my blog”

  1. I look forward to reading about your journey, and I wish you all the best as you get used to this new situation in your life. Having been deaf all my life I can only imagine how scary it must have felt, but I hope already you have received the support and information you need to help move forward. I do have a number of deaf friends who are teachers so with a bit of patience and equipment as needed (don’t know how it works in Spain in the hearing department?) you’ll be able to continue in the job you love. Please feel free to ask any questions too πŸ™‚

    Liked by 1 person

    1. Hello. Thank you so much for your kind and optimistic words. Also thank you for liking my blog. I will be seeing yet another specialist very soon for another opinion, and hopefully some help. I’ll look forward to reading your blog too, especially about your baking and running πŸ™‚

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  2. Hi Carly and thanks for following my blog. I will be following yours with great anticipation to see how you are coping with your unusual hearing loss. I am impressed how willing you are to not get “homebound” by this unfortunate problem and continue to get out in the world, as frustrating as it sometimes can be. While not exactly the same circumstances, I can understand how the loudness is very uncomfortable for you. Even though I am hearing impaired, I am very sensitive to loud noises and cover my ears quickly when a siren goes by or there is loud music. Must be a natural reaction to protect the hearing I have left. Thanks for sharing your experiences. Your description of the visit for the hospital test was excruciating. I find hearing tests very depressing, so I just quit taking them I thought I had done well on the last one only to find out I only got 6 words right out of 25!

    I have been to Barcelona once, many years ago. I have promised my wife that some day I will take her there so we can see the “almost” finished Sagrada Familia. We have visited many cathedrals throughout Europe, but this will be the granddaddy of them all!

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    1. Hello Al. Thank you for following me too, and for the lovely message πŸ™‚ I read a bit of your blog, where you were writing about how you find it difficult to hear certain letter sounds, and hence it’s difficult to hear words correctly. This must be very frustrating for you. I understand how you find hearing tests depressing. I feel the same. I have lost count of how many different types of hearing tests I have had during the last 6 months. At the beginning there was hope that things would improve, but now after every test I get told the same – that I cant hear in my left ear! – I could’ve told them that – no need for a test πŸ˜› I will look forward to reading your future blog posts. it is interesting to read about other people’s experiences of different types of hearing impairment, and the similarities and differences to my experience. I hope you will be able to return to Barcelona one day and visit the Sagrada Familia with your wife πŸ™‚ Take care. Carly

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  3. Hi Carly
    Small world, I live in Scarborough πŸ™‚
    You have a good page here and one I will enjoy as I follow your story. I think it’s important share our experiences with other people, as this way we cease to feel we are existing in isolation.
    Take care.
    Cheers, Phil

    Liked by 1 person

    1. Hi Phil πŸ™‚ thank you for the comment. Yes, it is a small world! It’s nice to know I have a reader in Scarborough! …My parents actually still live in Bridlington! Yes, it’s really good to share our experiences. It can be difficult going through this and helping others to understand the change in the way noises sound, and the other issues such as tinnitus that often come with hearing loss. It’s nice to connect with people who are experiencing similar difficulties…I hope you are adjusting to your hearing aids, and I’ll look forward to reading your future posts. Take care. Carly

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  4. Hi Carly thanks for the follow and good luck with the blog. When my second daughter was about 8 years old she was diagnosed with a cholesteatoma in her right ear. Normally such things grow in a sack but when they opened up her ear they discovered it had grown over all her hearing bones. The result was she has no hearing in that ear but if I didn’t tell you, you would never know as she has learned to compensate. The irony of her is she works as an audiologist and is doing very well. She will be 37 years old this year….Best wishes…

    Liked by 1 person

    1. Hello again Michael. What a wonderful comment! You have given me hope that I can eventually adjust to having only one hearing ear πŸ™‚ Does your daughter wear a CROS hearing aid? I am glad she is doing well, and she must be a great audiologist; having a personal understanding of how it feels to have a hearing impairment. Take care. Carly

      Liked by 1 person

  5. Hi, Carly, I came upon your blog through Jackie over at A Cooking Pot and Twisted Tales and I wanted to stop by to say hello and introduce myself. I look forward to exploring your site and learning about your story. Have a good one! ~Steph

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  6. Wow, we have the same issues/similar issues in veterinary medicine. Diagnosing the exact process you lived through is extremely difficult in animals. They can’t tell what they are feeling or hearing. I am positively intrigued with your story. I guess my best 2 comparisons are vestibular disease and wobbler’s syndrome. We have had great success in horses correcting the spine in this. Vestibular disease sadly is not as successful. I do know πŸ™‚ your cure is very close.

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      1. Yes it does. They are doing most of the surgeries in Denmark, I can fact check that for you if you give me time. Yes, animals definitely get sudden hearing loss for several reasons. Usually ear infections caused by food allergies if that helps.

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      2. Give me a couple days to get the studies from the doctors I know πŸ™‚ Do know that sheep actually have the most similar spines as people. They are doing studies on plating lower lumbar vertebrae now in sheep, because the success rate in LL surgery in people is about 70%. Now upper cervical spine surgery is fantastic. Also, I highly recommend you see about stem cell research πŸ™‚ I hope that helps πŸ™‚ I would lose my mind if I could not hear music 😦 I am so sorry you have to deal with this.

        Liked by 1 person

      3. Thank you. Any information is helpful! I can still hear music, but only in one ear and i have sensitivity to sound, which makes me not really want to listen to music anymore. I hope that one day, I will get used to the ‘loudness’ of music and be able to enjoy it again.

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  7. I Carley, I came over from Jacque’s party. It is kind of you to write your experience of hearing loss. The new ear thing was kind of disappointing, huh? I tried out hearing aids but gave up on them. I have some loss due to age. It is rather exasperating! But I am thankful that is only at the annoying stage. I hate having to ask people to repeat themselves. I’m marking your follow. Hope to see you more. Visit me if you have time. I write a bit of a lot of things – from humor to subjects like “hell.” I do some of the challenges, like haiku, and SSoC, nostalgia, and family issues. That is a range, isn’t it? I am a Christian so that is the perspective you will find. πŸ˜€

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    1. Hello Oneta. Thank you for visiting my blog, and for the comment. Yes, I had some very disappointing times with the hearing aid. At least I know I have tried them though…Sorry to hear about your hearing loss. Yes, it can be frustrating asking people to repeat themselves! Take care and I’ll visit your page too. Carly

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  8. Hi Carly,

    I too have lost all hearing in my left ear a year ago, and suffer with hyperacrusis. Apparently this is not uncommon, and is often caused by a virus. Usually one you don’t know you have, until you notice you can’t hear anything from one ear. Usually the treatment is large doses of steroids. If started immediately, the outcome is some return of hearing. However, this was not the case with me, and I am now profoundly deaf in my left ear. My hearing is too profound for a hearing aid and a cochlear implant comes with it’s own set of issues. One being, it uses magnets, ruling out future MRI’s as a diagnostic tool.

    I went through the whole gamete of tests, but they all proved negative, except my hearing test. ENT and audiologists agree it was a virus and it has damaged the nerves.

    As with you, a number of issues arose in my everyday life. Being pissed off is one of them. You see I play flute in a concert band, and who knew that to hear tone, you needed both ears. I am still struggling to play and often miss my cues but I am determined, so I continue.

    I am also a nurse. Lucky for me I had just changed jobs and now work in the community and not a noisy hospital setting. That too, I will not give up. I have had to adapt.

    I too have that horrible feeling of fullness, and suffer pain with loud noises. Forget going out for coffee or dinner, almost an impossible task. It leaves me anxious, nauseated and teary from concentrating so hard on conversation, and trying to block out white noise.

    I have cried with the unfairness, pain and frustration. People say but you two ears. What don’t they get?! You don’t just loose half your hearing. You loose so much more. I have nearly been run over, not hearing cars behind me in car parks and I have no idea where a sound is coming from.

    On the up side, I have never slept better in my life!!! Put my good ear to the pillow, and nothing.

    I hope you are able to adjust eventually. Some days I struggle, but I am getting there.

    Regards, Jenanne.

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    1. Hi Jenanne. I know I’m not Carly, but I just wanted to introduce myself. I just found this blog and your story is so similar to mine. You have expressed exactly how I feel at times. But just like you, I am determined to not let it stop me from doing what I’ve always done. And one of those things is singing on the praise team at my church! πŸ™‚ It is definitely more of a challenge, but I’m not giving it up without a fight! I’m on my 8th year dealing with this, so I know it is doable. The frustration will always be there, but I promise you, it will slip more and more into the background. Hang in there!

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    2. Hello Jenanne
      I’m so sorry, I didn’t reply to you…somehow I missed you comment.
      Your story is very similar to mine. It is also my left ear that is affected, and now has no functional hearing (also not enough for a regular hearing aid).
      You sound like a very determined person, and i can only start to imagine how difficult it is to play the flute after your hearing loss. Isn’t it funny how music sounds so different now? My favourite songs don’t sound as good anymore, and it often takes me quite a while listening to the introduction of a song before realising what it is…whereas previously i would have been able to identify a known song within seconds!
      I wonder ho you are getting on? Are you adapting? I still find that my hearing loss is at the front of my attention everyday as it affects so many things. I struggle most with the pressure in my ears and the sensitivity to sound…
      Anyway, i just wanted to say hello, and sorry I missed your comment.
      I hope you are doing ok.
      Take care
      Carly.

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    3. Jenanne, I just read your story. I also am a nurse. I lost my hearing in my left ear 7 weeks ago. Had the steroids and the steroid injections with no help. I spoke with someone about the CROS aid but I am leery because I have heard nothing positive about it. It also is an out of pocket expense of 1800. Which doesnt help because I have been off work. Short term disability was not approved because I had recently changed jobs. So now I am doing paperwork and phone calls at the surgery Center and I HATE it. I also dont now how long they will let me do that job since it is not a real position just one that they just created for me temporarily. My question for you is how long did it take you to get your balance back? I am doing Balance therapy and do the exercises but I still cannot go up and down and side to side quickly, dizziness and balance issues constantly…. I know that they say your brain will adapt but how long does it take and will I really adapt fully? The constant low buzz in my ear is also an issue and there are many places that I know I will never be able to go to again…Concerts, churches with organ music and Basketball games to name a few. Big loud restaurants are awful also. I am just trying to get used to this without feeling sorry for myself but it is hard. Any advise would be helpful. I cannot get an address for this blog but my email is cathynelson97@gmail.com. Please let me know if you get this message. Thanks so much. Cathy

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  9. Hi Carly and thank you so much for stopping by my blog. I love your writing and follow your story as I very much relate to your issues. Adjusting for me to the reality of living deaf in a hearing world is the toughest challenge I have ever encountered. As I move from deaf advocate to almost an activist, I fall prey to the pissed off emotional spray that we go through. Deaf overnight was almost easy for me, but 10 years later I seem to be in rabbit warren of emotional angst. I look forward to your posts and welcome your wonderful writing and perspective.
    Wamrest
    David
    fivestringguitar.com

    Liked by 1 person

    1. Hi David,
      Thank you for following, and for the lovely comment πŸ™‚
      Yes, there are definitely a lot of challenges in adjusting to living in a hearing world, after experiencing a hearing loss. I think the best thing we can do is try to explain to people about how our hearing loss affects us, and the way we communicate…That’s not to say that all people will be understanding, or even interested…but at least we can try πŸ™‚
      I’m so glad you like my writing, it’s something i really enjoy doing now, and something I only discovered I enjoyed since losing my hearing.
      Best wishes to you too, and I hope to have some time soon to pop by your blog also – I think we share some very similar experiences πŸ™‚
      Take care, Carly

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  10. I am now on day 20 of my left side sudden hearing loss and I am totally deaf in this ear, with no response to treatment it appears likely to be permanent. Reading your blog is reassuring to know that I am not the only one. Untill now I have tried to explain to friends that being deaf in one ear is nothing like you would imagine but really debilitating and it continues to make me feel totally disconnected to the world. I hope over time I will learn how to listen and that distinguishing between sounds will become a bit easier. My real worry is that the other ear may also beome affected!!! Thank you for your blog and sharing your experiences. I wish you all the best for the future.

    Liked by 1 person

    1. Hi Liz. Thank you for reading and for your comment. I am sorry to hear you are going through this. Your story sounds very similar to mine. I am glad you could find some reassurance in my blog…Yes, it is so difficult to explain to others how this all feels. In fact, the best way I have been able to communicate all my feelings and challenges is through writing this blog… You are so right – being deaf in one ear is so much more than the effect of just plugging one ear. In my case, there are so many other accompanying issues to my hearing loss – ear pressure, tinnitus, dizziness, sensitivity to sound and exhaustion!! Have you got any of these other issues? How did you lose your hearing?
      This is a difficult time to be going through, and one that others may find it difficult to empathize with. Be kind to yourself. It’s OK to feel sad – we have to grieve the loss of our hearing, and this takes time.
      If it is of any comfort, I am finding that although my hearing hasn’t improved, things are seeming more ‘normal’ to me. It’s amazing how our bodies can adapt to situations. Give yourself time you need to deal with this, and speak to those closest to you about how all this feels. I too, have the worry that this will happen in my right ear, and I’m not sure how to get past this…I’m still figuring things out…
      Thinking of you and wishing you all the best for the future. Please feel free to email me on my contact page if you ever want to talk more about your hearing loss or experiences.
      Best wishes
      Carly

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  11. Hi Carly,

    My name is Terri, and I also am a teacher. I will be beginning my 29th year of teaching in a couple of weeks. (4th grade). And I am also in the middle of my 8th year dealing with almost exactly the same thing you deal with. I have to try to give you the short version of my story, and to be honest, it probably won’t be short, and I understand if you aren’t able to take the time to read it all. It’s just nice to have a forum to express myself with others who understand.

    My doctors think that my unilateral hearing loss stemmed from a sinus infection I had that damaged the nerves in my right ear. For the first 4 years a regular hearing aid helped greatly sending the tinnitus I was experiencing to the background. However, in 2014, I got the flu with more fluid in my ears. I had my first and only debilitating vertigo attack and couldn’t move off my bed for 3 hours because of the dizziness. When I woke up the next morning I was “off” and could tell something happened with my hearing. I tried to go to school, but soon realized that I couldn’t do it. I was bumping into things and losing my balance. After an emergency trip to my ENT and then the audiologist, my hearing loss had gotten even more severe . . . and so did the tinnitus. I also started experiencing vertigo attacks where I would get nauseous turning over in bed. To top it off, I was “leaning” quite often and my word recognition had decreased. Of course, the over sensitivity to noise was the icing on the cake. Because of that, my hearing aid was useless. The tinnitus was my biggest obstacle in the beginning because it changed my mood. My poor students had to deal with a very ornery and impatient teacher that year. But I discovered a sound therapy called “Sound Cure” from a licensed audiologist who specialized in tinnitus. (http://www.hearingreview.com/2014/09/study-shows-soundcures-s-tones-effective-quieter-volumes-broadband-noise/) It GREATLY helped my brain habituate the tinnitus, and while it was still there nice and loud, it wasn’t changing my mood as much. I will still use it once in awhile when I feel the tinnitus overpowering me. (I would definitely recommend this treatment to anyone dealing with debilitating tinnitus.) Anyway, fast forward to the fall of 2017. I still get an audiogram every year. Frankly, the process fascinates me. Well, my hearing hasn’t changed, but my word recognition is at 0%. This has made the last year or two in the classroom very difficult. Like everyone else, I try to avoid noisy situations, but that is impossible in the classroom. I’ve been to specialists, I’ve had every test done, including dizziness testing to look at the nerves in the inner ear. Just like almost everyone else, the doctors aren’t sure what happened. They THINK it was a virus, but they’re not sure. The one thing they all agree on is that there is nothing to be done except try to live with it. After this last round of testing, I am done trying to figure it out. My next journey is to help the quality of my life become better. I have not stopped doing what I was doing before this started in 2010. I have worked through most of the frustrations and have really learned not to beat myself up when I make mistakes (and there are many! Haha!). I am learning to wait out the panic attacks that come when I get overwhelmed by the noise. Sometimes I have to excuse myself to go to a quiet room or outside for a few minutes, but it always passes. And my next step is trying a CROS hearing aid. That is actually how I found your blog. I read your experience with this and look forward to reading more of your experiences.

    I am so sorry to take up so much of your time, but if you have read this far, I want to thank you. I have a very close circle of friends and family who are supportive, but it is much different talking to someone who is dealing with the same thing. Just writing this has felt like a big release. πŸ™‚ Thank you, Carly, for putting yourself out there and describing your experiences so eloquently. You give a voice to many who don’t really have one.

    Terri

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    1. Hello Terri

      Thank you so much for reading my blog and for the detailed comment. Please don’t apologize for the length of your story. It is always great to hear from other people with similar experiences to mine, and I always have so many questions for people about their stories.

      Your message is so positive and reassuring, not only to me, but I’m sure for anyone else who stumbles across my blog. It gives so much hope to know that you are carrying on with your life as a teacher despite the challenges you now face. You are obviously a very strong person and I too am trying my best to continue to live my life as β€˜normally’ as I can. Just reading your message gives me some comfort in knowing that there is someone in the same profession as me who knows the difficulties experienced in working in a school environment, after a hearing loss whilst dealing with the other issues that can arise after losing your hearing. Your story does seem so similar to mine.

      Thank you for recommending the Sound Cure therapy. For me, the tinnitus isn’t too bothersome, apart from sometimes at night, I find the pressure sensation more difficult to cope with . But I know there are people who read my blog who find the tinnitus is the hardest thing to cope with, and so any recommendation of a therapy that really helps will, I’m sure, be really valuable to them.

      I am glad you found me through my CROS aid post, although my experience wasn’t a very successful one, and I fear it may sound quite negative. However, I have read of many other people having a really good experience from the CROS aid, and I have my fingers crossed for you. I actually wonder whether the aid was fitted correctly for me…maybe I will revisit this at some point in the future. I’d be really interested in whether you find it helps you.

      I’m really happy that you could find some interest/ comfort in my blog, and it would be great to hear how you get on in the future.

      Best wishes
      Carly

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    2. Hello again Terri
      I just wanted to let you know that I have set up a forum connected to my blog. Quite a few people over the past year or so have contacted me with their stories of hearing loss.
      I have set up the forum to provide a space for people to share their stories with each other, give each other support and advice, and to hopefully make some friends. This was an idea I got from your comment πŸ™‚

      Here is a link to the forum: https://myhearinglossstoryforum.wordpress.com/

      If you would like to share your story, contribute to discussion, or just meet some people who may be dealing with similar hearing issues to you or a loved one, please feel free to introduce yourself in my forum by typing into the text box at the top of the page. As it is new, I’m still a bit unsure of how the format will work…please let me know if you have any problems accessing it.

      I hope to see you soon in my new forum!
      Take care
      Carly.

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